Akuku Danger opens up on the struggles of living with Sickle cell

He has started a Centre for sickle cell warriors to be able to get medical assistance.


• Akuku danger is a sickle cell warrior and he has been actively fighting and championing for the needs of fellow sicklers in the country.

Akuku Danger
Image: instagram

Akuku Danger has had sickle cell anemia his entire life, and in 2021 he had the roughest experience with him spending a lot of time in the hospital due to it.

He just started the Center for Sickle Cell Warriors walk to raise money for the sickle cell foundation he plans to start.

According CDC ,Sickle Cell  Disease is a group of inherited red blood cell disorders.

Red blood cells contain hemoglobin, a protein that carries oxygen. Healthy red blood cells are round, and they move through small blood vessels to carry oxygen to all parts of the body.

In someone who has SCD, the hemoglobin is abnormal, which causes the red blood cells to become hard and sticky and look like a C-shaped farm tool called a “sickle.”

The sickle cells die early, which causes a constant shortage of red blood cells. Also, when they travel through small blood vessels, they get stuck and clog the blood flow.

This can cause pain and other serious complications (health problems) such as infection, acute chest syndrome and stroke.

Akuku Danger discussed how life has been after his health scare with a reporter from Mpasho News as well as his motivation for starting the organization.

Akuku Danger claims that was the most terrifying time of his life, and he truly gave thanks to God that he survived it well.

He claims that because he has always been sick, the only significant adjustment he had to make to his diet or way of life was that he stopped.

But he can dance , he can jump, around and entertain and he knows to what extent he can push his body to work.

"the only big problem we have as sicklers is that there is a lot of misinformation and misdiagnosis that happens in hospitals."

Akuku danger recounts of a time when he was feeling sick and he knew he had to check himself into the hospital but the nurses and doctors there did not know what to do with him.

"I had to assist the doctor to treat me so I just explained to them I need this particular medication and get me this particular drip."

He says he begun this foundation and Centre for fellow sicklers like him to be able to check themselves in hospital and get proper medication.

That he would also use it as a platform for engaging the government in getting assistance in terms of insurance covers for people with sickle cell anemia.

He also aims to use it to educate people against the myths and misconceptions that they have against people with sickle cell.

Also to teach people on the difference between leukemia and sickle cell as most people still confuse the two diseases.

He hopes that this would grow to be something big and he was particularly grateful to Sandra Dacha for standing with him all through.

Akuku danger shared that unlike most of his celebrity friends , Sandra dacha has been there for him in the campaign for sickle cell and even when he was sick, she was there standing with him.

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