'She kept deteriorating,' Betty Kyallo opens up about her daughter's hospitalization

Piece by: Grace Kerongo
Lifestyle

For the first time ever, Betty Kyallo has opened up about the gruelling experience of seeing her daughter hospitalized in ICU and later moved to recovery for 4 month.

The K24 presenter posted the photos of the daughter in hospital with tubes going through her mouth and nose.

Betty reveals that Ivanna was diagnosed with a rare autoimmune disease called ADEM (acute disseminated encephalomyelitis).

In the post Betty explained,

“What this means is that one day my beautiful four year old daughter stopped walking, soon stopped talking, soon stopped eating soon was so drowsy couldn’t keep her eyes open and thereafter went into a deep coma that she had to be taken to ICU and put on life suppport for a whole month.”

Betty continued,

“For the Larger part of her diagnosis doctors couldn’t even figure out what was wrong with her. We did numerous tests looking at every organ and blood but for a long time of hospitalization in Nairobi Hospital Children's ward we couldn't find it. All the while she kept deteriorating every day losing one function after another. Today she could talk the next day she couldn't make a sentence.” 

Betty painted a picture of how that period was like for her and her family.

"I was depressed, cried silently sometimes hoping God would see my tears. I always feared going to the ward or ICU because I wasn't sure what function she would lose the next day or hour. Thankfully God saw my tears."

Celebrating the end of 2019, Betty is grateful for the health of her only daughter.

"Today she could talk the next day she couldn't make a sentence. Etc. Thanks to God and the brilliant doctors that were so kind and gracious in their work and how they diligently treated my daughter especially Dr Ismail primary ICU pediatric carer for my daughter, the overall lead Neur-ologist carer Dr Oyatsi and ICU nurses, Ward doctors and nurses we finally found a name to what was eating her."

Adding, "As a mother this was my lowest time, I was crushed every day seeing my daughter wasting away and Couldn't do anything."